There are many symptoms given for ALS. Keri sat at her computer and read about her symptoms, and decided she could possibly have ALS long before her diagnosis. However, her case started with pain, which is not typical. Keri never lost her ability to speak, but the bipap’s usage 100% of the time, took away her ability to project her voice.
Although many symptoms are the same, most victims do not have all of them, nor are any two cases exactly the same. ALS is determined from the elimination process, over time. One big problem with “testing” for ALS, is there IS no test, unless you have the gene that is present in many cases of familial ALS. You go through the standart EMG/nerve conduction study, which says, okay, you have nerve damage. Why, you ask? Anyone’s guess. They can’t tell you that. You can request a spinal tap, brain and spinal MRIs, and bloodwork (which only checks for a few known standard viruses or parasites, and then the physycian must specify).
But for many cases, there seem to be young women who develop ALS during or shortly after pregnancy. We have come to believe that these women had a trauma of some kind, be it an accident, infection, or virus, that was retained in the body. Then with the total hormonal and physical change process a woman’s body goes through during pregnancy, something gets triggered that overpowers the body’s healing of the previous condition, which has lingered in the body.
I believe that ALS is just that, except in the case of these women, it may not have materialized without the pregnancy.
This is my opinion, based on my daughter Keri, and the women I have met these past 3 years searching for answers. Feel free to comment to me or prove me wrong. Either way, we’re all trying to find the answer.
IF WE CANNOT FIND THE CAUSE, I don’t see a cure fast coming.
Joan R. Brown, Co-founder of Keri’s Crusade