Don’t forget the “Keri’s Crusaders are walking and running in the Human Race in Greensboro NC on March 31st. The money we raise directly supports Keri’s Crusade for ALS. Please feel free to come and walk with us or donate to our team. Every little bit helps us help someone suffering with ALS.”

CLICK HERE

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Most important, you need to do your own research.  ALS, like cancer, MS, MD, etc, can have many faces.  Don’t be afraid to try something new or unpopular, but do your research first.  That said, I provide links here to provoke you to learn more in many directions.   Joan Brown, President – Keri’s Crusade

TRIALS currently conducted by NEALS 

ALS and Spirulina Research 12/2010  ♦  Mutation linked to Protein .. 12/2010

 Clinical Trial - updated 12/2010 ♦  Model Care for Veterans with ALS 

 Young Faces of ALS (ALS/TDI)   

Brain Trauma can Mimic ALS  ♦  Phase 1 – NP001 Study

Wrong Diagnosis and ALS    

ALS Registry Update 12/2010  ♦  ALS Advocacy

Stem cell trial in U.S. for ALS - updated 6/10

Hair Analysis: ADVANCED FAMILY HEALTH - Click HERE for the ALS page Dr. K. Akin is compiling information on the consistencies in ALS cases!

 FLU SHOT?  ♦  Dr. Mercola on VACCINES

♦ Young Victim of ALS  ♦  See this but search more on LYME & ALS misdiagnosis

STEM CELL Discussion   ♦  Gulf War Veterans and ALS

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 I always put a flower in the old tree down in the woods, for you Mommy, for Mother’s Day.

I said to Grandma today riding home from church, “When I die, I want to take a flower to heaven for Jesus and a flower for Mommy to make them happy.”

Kellyn understands remarkably well and much, for 4 years old. She says she wants Mommy Keri to come back, so she can play with her. She does not however, understand what ALS is.

And neither do we.

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UPDATES:  MARCH 26 – The Human Race Charity walk went great!  KERI”S CRUSADE team, headed by Keri’s friend Gwen Sellers, collected over $1,700!!  MOST goes to Keri’s Crusade for ALS!  THANK YOU!! 

April 2 was WALK TO DEFEAT ALS at Winston-Salem’s Wake Forest Campus. Keri’s Crusaders raised over $1000 to benefit the tremendous work done by the ALS Association – Catfish Hunter Chapter (NC)! THANK YOU ALL who turned out on a beautiful day!

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There are many symptoms given for ALS. Keri sat at her computer and read about her symptoms, and decided she could possibly have ALS long before her diagnosis.  However, her case started with pain, which is not typical. Keri never lost her ability to speak, but the bipap’s usage 100% of the time, took away her ability to project her voice. 

Although many symptoms are the same, most victims do not have all of them, nor are any two cases exactly the same.  ALS is determined from the elimination process, over time.  One big problem with “testing” for ALS, is there IS no test, unless you have the gene that is present in many cases of familial ALS.  You go through the standart EMG/nerve conduction study, which says, okay, you have nerve damage.  Why, you ask? Anyone’s guess. They can’t tell you that.  You can request a spinal tap, brain and spinal MRIs, and bloodwork (which only checks for a few known standard viruses or parasites, and then the physycian must specify). 

But for many cases, there seem to be young women who develop ALS during or shortly after pregnancy.  We have come to believe that these women had a trauma of some kind, be it an accident, infection, or virus, that was retained in the body. Then with the total hormonal and physical change process a woman’s body goes through during pregnancy, something gets triggered that overpowers the body’s healing of the previous condition, which has lingered in the body.

I believe that ALS is just that, except in the case of these women, it may not have materialized without the pregnancy.

This is my opinion, based on my daughter Keri, and the women I have met these past 3 years searching for answers.  Feel free to comment to me or prove me wrong. Either way, we’re all trying to find the answer. 

IF WE CANNOT FIND THE CAUSE, I don’t see a cure fast coming.   

Joan R. Brown, Co-founder of Keri’s Crusade

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